{"id":32351,"date":"2016-10-20T05:00:24","date_gmt":"2016-10-20T11:00:24","guid":{"rendered":"https:\/\/tested-neuron.flywheelsites.com\/?p=32351"},"modified":"2016-10-28T12:35:36","modified_gmt":"2016-10-28T18:35:36","slug":"one-company-returning-dignity-disabled-uganda","status":"publish","type":"post","link":"https:\/\/unreasonablegroup.com\/articles\/one-company-returning-dignity-disabled-uganda\/","title":{"rendered":"How One Company Is Returning Dignity to the Disabled in Uganda"},"content":{"rendered":"

This is the inaugural post of a series<\/a> documenting entrepreneurship in East Africa and the companies that participated in the Unreasonable East Africa<\/a> 2016 program.<\/em><\/p>\n

\n

In\u00a0Uganda today, approximately\u00a02.5 million<\/a> children live with some form of\u00a0developmental disability. Some of these children may be lucky to receive the care necessary to treat their conditions, but many of them will spend their days confined to a mat on the floor or bound to a chair, ignored or altogether disavowed by communities that are ill-equipped to address their needs.<\/p>\n

Despite the Ugandan government signing and ratifying the UN Convention on the Rights of the Child, 93 percent of the nation\u2019s disabled children will never enter primary school. Without access to education or adequate health care, their futures look equally bleak: In northern Uganda, 80 percent of disabled people report<\/a> living in chronic poverty.<\/p>\n

Approximately 2.5 million Ugandan children live with some form of developmental disability.<\/i> Tweet This Quote<\/a><\/span><\/p><\/blockquote>\n

Steve and Asha Williams, husband and wife co-founders of the Kyaninga Child Development Centre<\/a> (KCDC), were living in Uganda when their son was born with epilepsy and a permanent developmental delay. In the year and a half following his birth, they traveled throughout Uganda and Kenya seeking support, and instead found only a critical absence of organizations positioned to help children with disabilities.<\/p>\n

\u201cThe more we looked,\u201d Steve recalls, \u201cthe more we realized how many kids needed help. These systems didn\u2019t exist because most of the parents don\u2019t talk about kids with disabilities. They think it\u2019s witchcraft, or a curse, or judgment from God.\u201d<\/p>\n

Even when local governments run censuses, families often choose not to report disabled children.<\/p>\n

\u201cIt\u2019s not that families don\u2019t care,\u201d says Fiona Beckerlegge, KCDC\u2019s third co-founder and chief therapist. \u201cIt\u2019s that they don\u2019t know how to.\u201d<\/p>\n

Beckerlegge moved to Uganda in October 2013 after responding to an ad for a physical therapist that Steve and Asha had posted in London following their son\u2019s birth. Little more than a year later, the team opened KCDC in Fort Portal, in the Kabarole District of western Uganda. To date, the company is the only organization within 250 kilometers that provides multi-disciplinary rehabilitation for children with disabilities.<\/p>\n

Most of the parents don\u2019t talk about kids with disabilities. They think it\u2019s witchcraft, or a curse, or judgment from God.<\/i> Tweet This Quote<\/a><\/span><\/p><\/blockquote>\n

KCDC runs as an outpatient clinic that employs a team of Ugandan and British occupational, physical, and speech therapists, orthopedic officers, and community health workers. The staff also mobilizes every day in villages within 50 kilometers of Kabarole to visit homes, schools, and local health centers.<\/p>\n

Of the children treated at KCDC, 40 percent live with cerebral palsy, a non-progressive brain injury that disrupts movement, muscle tone, speech, and varied aspects of development. A further 24 percent struggle with developmental delays that may not cause spasticity of the muscles, but which result from injuries sustained in birth or illness.<\/p>\n

\"Resource:<\/a>

Resource: Kyaninga Child Development Centre<\/p><\/div>\n

Infant mortality rates in Uganda have declined significantly<\/a> since 2006, according to a report carried out by the Uganda Bureau of Statistics, but because mothers in labor often delay seeking medical attention, instances of birth-related disability have increased.<\/p>\n

\u201cWhat seems to have happened is that they\u2019re saving more babies,\u201d Beckerlegge says, \u201cbut those babies aren\u2019t surviving without problems.\u201d<\/p>\n

Yet providing health and rehabilitation services for these children does little to address the larger attitudinal barriers that preclude them from fully realizing their rights as capable participants in their communities. KCDC therefore aims to dissolve the cultural stigma surrounding disability by raising awareness through community events and educating the children\u2019s families about the viability of treatment.<\/p>\n

\u201cOne of the most rewarding things for us is seeing the parents reconnecting with their children,\u201d Beckerlegge notes. \u201cWe\u2019ve had more than one mother say to us, \u2018Thank you for giving my child back to me.\u2019 Instead of seeing them as a burden, now the families are seeing them as a child again, and you can watch the relationships changing.\u201d<\/p>\n

Because mothers in labor often delay seeking medical attention, instances of birth-related disability have increased.<\/i> Tweet This Quote<\/a><\/span><\/p><\/blockquote>\n

While KCDC does not currently charge for its services, the team may soon run trials in which community leaders motivate beneficiary families to pay a small fee that would enable the Centre to scale and serve more children. The challenges are then implicit: If a mother can\u2019t afford to pay for her child\u2019s medication, or in some cases, for the transportation to and from the clinic itself, how could she afford to pay a service fee? And if her child needs constant care at home, how would she manage to leave the house in order to earn wages?<\/p>\n

To circumvent these limitations, KCDC equips families with the tools and skills they need to generate income from their homes. In addition to partnering with BeadforLife<\/a>, an organization that provides business training and support to women in Uganda, KCDC also runs a closed-circuit produce program in which they gift goats to families and then buy back the cheese. In doing so, Beckerlegge explains, the team can create sustainable income for both the family and the company, which otherwise relies primarily on funds from a trust set up in the U.K.<\/p>\n

Looking ahead, KCDC plans to expand its community outreach program and to establish a second Centre in Kabarole\u2019s neighboring district. Within the next year, Steve also hopes to open a third operation in Kampala, where the company could charge more for services in order to sustain its rural branches.<\/p>\n

‘Instead of seeing them as a burden, now the families are seeing them as a child again.’<\/i> Tweet This Quote<\/a><\/span><\/p><\/blockquote>\n

In the meantime, the team continues to build community awareness in an effort to foster the reintegration of disabled children into society.<\/p>\n

\u201cWe are now really trying to find ways for the children to be given a chance to go back into elementary education,\u201d Steve says. \u201cWe\u2019re speaking with teachers at schools that lack specialist programs and seeing what adaptions could be made on the child\u2019s behalf. Many of them are now agreeing to allow us to follow up and provide training.\u201d<\/p>\n

The Centre will also soon host several events \u2014 from a professional ballroom dancing competition to an inclusive sports day in partnership with the Ugandan Special Olympics Committee \u2014 that will encourage awareness on a larger scale.<\/p>\n

\u201cWe\u2019re hoping these events will draw a lot of people so that we can use them as an opportunity to get the culture to accept the children more,\u201d says Steve. \u201cWhen communities turn up, see that the child matters, and people actually believe in him or her, it has a very, very big impact.\u201d<\/p>\n","protected":false},"excerpt":{"rendered":"

In Uganda, some believe that disabilities are from curses or witchcraft. This startup fights cultural stigma by creating opportunities for disabled children.<\/p>\n","protected":false},"author":180,"featured_media":32371,"comment_status":"open","ping_status":"closed","sticky":false,"template":"","format":"standard","meta":{"spay_email":"","footnotes":"","_links_to":"","_links_to_target":""},"categories":[476,3008,1503,1919,2382],"tags":[3353,3351,3354,2041,3352,3350,3356,1173,3355],"class_list":["post-32351","post","type-post","status-publish","format-standard","has-post-thumbnail","hentry","category-article","category-east-africa-2016","category-east_africa","category-wellness","category-youth","tag-cerebral-palsy","tag-disabled","tag-disabled-children","tag-east-africa","tag-learning-disability","tag-social-stigma","tag-special-olympics","tag-uganda","tag-witchcraft"],"acf":[],"yoast_head":"\nHow One Company Is Returning Dignity to the Disabled in Uganda<\/title>\n<meta name=\"description\" content=\"In Uganda, many believe that disabilities result from curses or witchcraft. 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